[ExI] Science or Scientism?
sen.otaku at gmail.com
Tue Nov 13 05:45:56 UTC 2018
I’m quite inclined to agree with you on all counts here. If I knew that my child would have issues such as Downs, micro encephalitis, hydro encephalitis, etc, I would not keep the child. Whether that meant getting an elective, or giving up for adoption.
To be honest, I’m not sure I’ll have biological children anyway. Firstly, while I do have a high IQ, and come from a family with high IQ, I had very difficult emotional disconnection growing up.
Until 16 I thought there were only 3/4 emotions and all the rest were figures of speech. I could not read facial expressions almost at all until I taught myself using some online resources meant to teach micro-expressions and lie detection. I am quite bad with faces, to be point I have on occasion not recognized my own parents (for example after they get a haircut, etc). The real Turing point for me was reading a book on NLD (Non-verbal Learning Disorder) written by a mother and her son who had the condition. I have never identified with anyone in my life more than the boy in that book. We experienced so many of the same struggles and many of the stories she told about him could have just been straight out of my own life.
I believe it is this book: https://www.amazon.com/Bridging-Gap-Nonverbal-Learning-Disorder-ebook/dp/B001NMQZH6
In each of the chapters, she coaches parents through a different type of situation they might face, and how to explain it to their child in a way that will make sense. Reading those explanations was just... so profound and explained so much. I literally cannot explain how much this book really changed my life (as lame as that may sound).
Additionally, for about 12 years I suffered with mental health issues, which have just recently let up. I have spent enough time in psych hospital to know exactly what you mean when it comes to budgeting issues. These issues are quite sever and run in the family. For example, my mother suffered from catatonic depression for about a year after losing one of her jobs.
But probably, the bigger reason I probably won’t have kids is because I’m terribly introverted (quite content to never leave the house) and frankly, I scare most of the guys I date. Not that I have anything against eternal bachelorhood. It has it’s perks.
But I do wonder, somewhat, why there isn’t a more effective voting bloc for Downs or MR in general. I understand why mental health doesn’t, as the stigma is still quite intense in some regions, cultures, or religious groups in the US. But it seems to be making a bit of progress. Out where my mother lives, she used to do volunteer education services teaching people that mental health issues were not caused by either Sin or Demons. It’s still a very real belief in some parts of the US, unfortunately.
> On Nov 12, 2018, at 6:29 PM, William Flynn Wallace <foozler83 at gmail.com> wrote:
> And it's a shame that so few states provide a level of quality education, with special student Master's level education for the teachers. No surprise that life expectancy is better than the 70s. But many were better off in an institution. Most people can't realize just how much time and expertise it takes to raise a mentally retarded person, much less the costs, and much less having to keep them at home for their lifespan. Few could be left home alone. Parent can get really frustrated with having a child, in effect, living in their home all their lives. Parents who do this are saints, devoting most of their time to this.
> When presented with these facts, many parents choose to abort after the amniocentesis shows Down's. Extremely controversial issue, of course.
> Privacy laws went into effect long ago. In my time you could stroll through a hospital for the MR and peruse the hydrocephalics and all. In fact, I think the average person would be stunned. George Wallace's wife, then governor, went to Partlow (in Tuscaloosa) and came out crying on TV and vowed to go to Montgomery and put through bills for a lot more money for the MR and mentally ill, but with George Wallace pulling the strings, it never happened. I'll bet most people would come out like Lurleen Wallace did and have great compassion for the people who had to live and work in those environments. But whoever ran a political campaign mentioning money for these people and the staffs? Expert help is needed, but rarely provided. When I worked in the Mississippi state mental hospital (for $200 a month plus room and board, cooked by the inmates) you could get a job there with a 2nd grade education. Seriously.
> Keep in mind that the MR make up more than 3% of the overall population, and mental patients add much more to that, and you can see the level of money needed to provide adequate care. Given how many people are affected by having these people in their families, one would think that there would be effective lobbies.
> bill w
>> On Mon, Nov 12, 2018 at 6:01 PM SR Ballard <sen.otaku at gmail.com> wrote:
>>> On Nov 12, 2018, at 5:08 PM, William Flynn Wallace <foozler83 at gmail.com> wrote:
>>> I have no idea. But I can tell you this: I taught MR for several years in the 70s, and 25 was what was listed in the texts. I have strong doubts that those afflicted are any better now than they were then. It has really stuck in my mind, because, for one thing, that was the average, meaning about half were lower. Trisomy really screws up your body. Most - percentage unknown - die fairly young. For one hint, averages are NEVER reported as ranges, only as single points, so whoever did that is a statistical moron. Do you have a particular interest in this?
>>> bill w
>> Well, perhaps things have actually changed somewhat, due to de-institutionalization. As a side effect of being raised in a supportive family environment, the life expectancy of those with Downs seems to have increased somewhat dramatically. And, due to changes in educational law (mandating public school accommodation) it seems that more are receiving education to a higher level than before— what the standard grade equivalent is, I’m not so sure.
>> And no, I had no particular interest in it before this conversation, but considering how common it is, I was surprised that it isn’t better ... that there isn’t more straightforward information to the answers to my questions readily available online? Which, of course, piques my interest. I love learning things which have absolutely no practical application in my life. It’s a hobby that makes me quite good at trivia, but quite a bore at parties.
>> I’m quite aware that averages are reported as a single number, just as you should be aware that most texts intended for a lay audience will instead list them as a range if they are not a pretty number, as decimals and “odd” numbers bother people. The only exception I can think of is body temperature in Fahrenheit.
>> SR Ballard
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