[ExI] Gene Therapies Are Almost Here, But Healthcare Isn’t Ready for Sky-High Prices

John Grigg possiblepaths2050 at gmail.com
Sat Sep 11 22:12:10 UTC 2021


"Zolgensma
<https://theconversation.com/the-most-expensive-drug-in-the-world-how-it-works-and-the-devastating-disease-it-treats-164535>—which
treats spinal muscular atrophy
<https://www.mda.org/disease/spinal-muscular-atrophy>, a rare genetic
disease that damages nerve cells, leading to muscle decay—is currently the
most expensive drug in the world. A one-time treatment of the life-saving
drug for a young child costs $2.1 million
<https://www.npr.org/sections/health-shots/2019/05/24/725404168/at-2-125-million-new-gene-therapy-is-the-most-expensive-drug-ever>
.

While Zolgensma’s exorbitant price is an outlier today, by the end of the
decade there’ll be dozens of cell and gene therapies, costing hundreds of
thousands to millions of dollars for a single dose. The Food and Drug
Administration predicts that by 2025 it will be approving 10 to 20 cell and
gene therapies
<https://www.fda.gov/news-events/press-announcements/statement-fda-commissioner-scott-gottlieb-md-and-peter-marks-md-phd-director-center-biologics>
every
year."
https://singularityhub.com/2021/09/07/gene-therapies-are-almost-here-but-healthcare-isnt-ready-for-sky-high-prices/
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