<div dir="ltr"><div class="gmail_default" style="font-family:"comic sans ms",sans-serif;font-size:small;color:rgb(0,0,0)"><p class="MsoNormal" style="margin:0in 0in 0.0001pt;font-size:11pt;font-family:calibri,sans-serif;color:rgb(34,34,34)">A wild shot in the dark is better than dying with unfired ammo, ja?<span class="gmail-HOEnZb"><font color="#888888"><u></u><u></u></font></span></p><span class="gmail-HOEnZb" style="color:rgb(34,34,34);font-family:arial,sans-serif;font-size:27.2px"><font color="#888888"><p class="MsoNormal" style="margin:0in 0in 0.0001pt;font-size:11pt;font-family:calibri,sans-serif"><u></u> <u></u></p><p class="MsoNormal" style="margin:0in 0in 0.0001pt;font-size:11pt;font-family:calibri,sans-serif">spike</p><p class="MsoNormal" style="margin:0in 0in 0.0001pt;font-size:11pt;font-family:calibri,sans-serif"><br></p><p class="MsoNormal" style="margin:0in 0in 0.0001pt;font-size:11pt;font-family:calibri,sans-serif">I see one little problem: the list will quickly grow to millions; it will take a big website underwritten by Bill Gates or ???? A staff of volunteers to run it,and so on.</p><p class="MsoNormal" style="margin:0in 0in 0.0001pt;font-size:11pt;font-family:calibri,sans-serif"><br></p><p class="MsoNormal" style="margin:0in 0in 0.0001pt;font-size:11pt;font-family:calibri,sans-serif">I DO think it's a good idea. I don't think any medical people will touch it - lawsuits. What it would be is a giant form of the People's Pharmacy, with everyone who wants to posting their symptoms. You would also get people referring you to doctors who have solved their cases, folk remedies (nothing wrong with that for the desperate - I tried on, soap under my sheets for leg and foot cramps and it WORKS), foreign stem cell treatments - in short, a big huge holy mess.</p><p class="MsoNormal" style="margin:0in 0in 0.0001pt;font-size:11pt;font-family:calibri,sans-serif"><br></p><p class="MsoNormal" style="margin:0in 0in 0.0001pt;font-size:11pt;font-family:calibri,sans-serif">Are you volunteering? Take it to those people who fund nonprofit startups.</p><p class="MsoNormal" style="margin:0in 0in 0.0001pt;font-size:11pt;font-family:calibri,sans-serif"><br></p><p class="MsoNormal" style="margin:0in 0in 0.0001pt;font-size:11pt;font-family:calibri,sans-serif">There's probably all kinds of this stuff on the web, but it's in bits and pieces on scores of sites (and no, I don't know any of them).</p><p class="MsoNormal" style="margin:0in 0in 0.0001pt;font-size:11pt;font-family:calibri,sans-serif"><br></p><p class="MsoNormal" style="margin:0in 0in 0.0001pt;font-size:11pt;font-family:calibri,sans-serif">Me - very introverted, very highly sensitive, very low pain threshold, very high sedation threshold (meaning it takes far more of a pain reliever to affect me). No doctor will prescribe additional meds based on the above because he will get caught for over-prescribing, which he is actually not doing; his is just adjusting the meds to the patient. There must be millions of people in the same fix. Eventually medicine will take personal genetic info and prescribe according to it, but I likely won't see it.</p><p class="MsoNormal" style="margin:0in 0in 0.0001pt;font-size:11pt;font-family:calibri,sans-serif"><br></p><p class="MsoNormal" style="margin:0in 0in 0.0001pt;font-size:11pt;font-family:calibri,sans-serif">All doctors can do is try to get you into a clinical trial, and that's very limited and hard to get in.</p><p class="MsoNormal" style="margin:0in 0in 0.0001pt;font-size:11pt;font-family:calibri,sans-serif"><br></p><p class="MsoNormal" style="margin:0in 0in 0.0001pt;font-size:11pt;font-family:calibri,sans-serif">Go get'em Spike!</p><p class="MsoNormal" style="margin:0in 0in 0.0001pt;font-size:11pt;font-family:calibri,sans-serif"><br></p><p class="MsoNormal" style="margin:0in 0in 0.0001pt;font-size:11pt;font-family:calibri,sans-serif">bill w</p></font></span></div></div><div class="gmail_extra"><br><div class="gmail_quote">On Fri, Sep 23, 2016 at 9:45 AM, spike <span dir="ltr"><<a href="mailto:spike66@att.net" target="_blank">spike66@att.net</a>></span> wrote:<br><blockquote class="gmail_quote" style="margin:0 0 0 .8ex;border-left:1px #ccc solid;padding-left:1ex"><div lang="EN-US" link="#0563C1" vlink="#954F72"><div><p class="MsoNormal"><u></u> <u></u></p><p class="MsoNormal"><u></u> <u></u></p><p class="MsoNormal">Cool, I was hoping something like this would happen. Currently if a patient has a disease that we know we have nothing to fight, patients don’t really have a good way to just try something, anything, take a shot in the dark, better than just laying down your arms and dying with ammo still in your weapon just because we can’t see the target, a hail Mary play, anything, just anything:<u></u><u></u></p><p class="MsoNormal"><u></u> <u></u></p><p class="MsoNormal"><a href="http://www.medpagetoday.com/PublicHealthPolicy/HealthPolicy/60419?xid=NL_breakingnews_2016-09-23&eun=g760153d0r" target="_blank">http://www.medpagetoday.com/<wbr>PublicHealthPolicy/<wbr>HealthPolicy/60419?xid=NL_<wbr>breakingnews_2016-09-23&eun=<wbr>g760153d0r</a><u></u><u></u></p><p class="MsoNormal"><u></u> <u></u></p><p class="MsoNormal">OK so we see the downside: possible bad actors pushing some goofy useless pharmaceutical product for profit. So I thought of an idea. We could take all the hopeless cases, get them to sign up for something, anything. Then we get a board of overseers, non-professional, volunteers perhaps, nobody with any possible route to profit, just observers and advisors. We open up some kind of web-based public data site, so that everyone can view the database. We include what meds the patient consumed, and perhaps some kind of database to describe the vital stats, the outcome, etc.<u></u><u></u></p><p class="MsoNormal"><u></u> <u></u></p><p class="MsoNormal">The task would be large-scale pattern recognition, the kind that cannot be readily done by machine by known means, but a million pairs of eyes might be able to extract a pattern. We could number the medications, perhaps have advisors to steer the patient away from off-label pharmas that would make any known medical condition worse (if the patient had hypertension for example, that patient’s right-to-try package would eschew stimulants.<u></u><u></u></p><p class="MsoNormal"><u></u> <u></u></p><p class="MsoNormal">One I have wondered about for a long time: those steroids that professional sports people are supposed to not take but we know they do. What if… a terminal heart patient is given big doses of that? If the patient is spinning into the ground anyway and we know what will happen if we stand around and do nothing, why not give him that? If he eagerly volunteers and we don’t really know if it will help, why not just try something, anything? A wild shot in the dark is better than dying with unfired ammo, ja?<span class="HOEnZb"><font color="#888888"><u></u><u></u></font></span></p><span class="HOEnZb"><font color="#888888"><p class="MsoNormal"><u></u> <u></u></p><p class="MsoNormal">spike<u></u><u></u></p></font></span></div></div><br>______________________________<wbr>_________________<br>
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