[ExI] personal medical record software

[spike at rainier66.com]

From: extropy-chat <extropy-chat-bounces at lists.extropy.org...

Subject: Re: [ExI] personal medical record software

 

>…I am glad it turned out to be a timely topic, though not the one I started.  I easily get my records….bill w

 

Cool but there is yet another direction I wanna take this.  Indulge me, por favor. 

 

23&Me started out with a cool idea which was an epic fail.  The cool idea was to use the PCR-based consumer-priced DNA kits, have users enter all the stuff wrong with them, then look for correlations with certain DNA groups to see if we can work backwards and tell new users what is most likely to kill them, perhaps allowing them to more wisely invest their medical dollars and life insurance policies, that sorta thing.

 

It was an epic fail because most people don’t know what is wrong with them.  The question forms they filled out were garbage: even if their doctor tells them what is wrong with them, they still don’t understand.  There are plenty of really smart people, and I am privileged to know a lot of them.  But as a group, humans are really stupid.  The dataset was garbage.  The output from 23 is in my opinion useless.

 

23 at Me needed a lot of security and privacy infrastructure, which made it very frustrating to use as a genealogy tool.  

 

Ancestry.com took the opposite approach: it was designed to help genealogists and was never intended as a medical tool.  So that one has lousy privacy infrastructure, because it was never intended to keep secrets.  It was intended to share info, and it is good at that.

 

OK, so… if we have a good means of figuring out an accurate biological tree, as we do with AncestryDNA, then allow volunteers who used AncestryDNA to contribute their medical records such as the ones BillW mentioned, then future generations, possibly even present generations, can perhaps find ways to use mathematical tools (such as my own obsession the Kalman filter) so that they might be able to figure out what maladies are most likely to slay them.  Cool!

 

spike     

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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