[Paleopsych] NYT: Life at the Top in America Isn't Just Better, It's Longer
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Life at the Top in America Isn't Just Better, It's Longer
http://www.nytimes.com/2005/05/16/national/class/HEALTH-FINAL.html
[Second in a series of articles on class in America.]
By JANNY SCOTT
Jean G. Miele's heart attack happened on a sidewalk in Midtown
Manhattan last May. He was walking back to work along Third Avenue
with two colleagues after a several-hundred-dollar sushi lunch. There
was the distant rumble of heartburn, the ominous tingle of
perspiration. Then Mr. Miele, an architect, collapsed onto a concrete
planter in a cold sweat.
Will L. Wilson's heart attack came four days earlier in the bedroom of
his brownstone in Bedford-Stuyvesant in Brooklyn. He had been regaling
his fiancée with the details of an all-you-can-eat dinner he was
beginning to regret. Mr. Wilson, a Consolidated Edison office worker,
was feeling a little bloated. He flopped onto the bed. Then came a
searing sensation, like a hot iron deep inside his chest.
Ewa Rynczak Gora's first signs of trouble came in her rented room in
the noisy shadow of the Brooklyn-Queens Expressway. It was the Fourth
of July. Ms. Gora, a Polish-born housekeeper, was playing bridge.
Suddenly she was sweating, stifling an urge to vomit. She told her
husband not to call an ambulance; it would cost too much. Instead, she
tried a home remedy: salt water, a double dose of hypertension pills
and a glass of vodka.
Architect, utility worker, maid: heart attack is the great leveler,
and in those first fearful moments, three New Yorkers with little in
common faced a single, common threat. But in the months that followed,
their experiences diverged. Social class - that elusive combination of
income, education, occupation and wealth - played a powerful role in
Mr. Miele's, Mr. Wilson's and Ms. Gora's struggles to recover.
Class informed everything from the circumstances of their heart
attacks to the emergency care each received, the households they
returned to and the jobs they hoped to resume. It shaped their
understanding of their illness, the support they got from their
families, their relationships with their doctors. It helped define
their ability to change their lives and shaped their odds of getting
better.
Class is a potent force in health and longevity in the United States.
The more education and income people have, the less likely they are to
have and die of heart disease, strokes, diabetes and many types of
cancer. Upper-middle-class Americans live longer and in better health
than middle-class Americans, who live longer and better than those at
the bottom. And the gaps are widening, say people who have researched
social factors in health.
As advances in medicine and disease prevention have increased life
expectancy in the United States, the benefits have disproportionately
gone to people with education, money, good jobs and connections. They
are almost invariably in the best position to learn new information
early, modify their behavior, take advantage of the latest treatments
and have the cost covered by insurance.
Many risk factors for chronic diseases are now more common among the
less educated than the better educated. Smoking has dropped sharply
among the better educated, but not among the less. Physical inactivity
is more than twice as common among high school dropouts as among
college graduates. Lower-income women are more likely than other women
to be overweight, though the pattern among men may be the opposite.
There may also be subtler differences. Some researchers now believe
that the stress involved in so-called high-demand, low-control jobs
further down the occupational scale is more harmful than the stress of
professional jobs that come with greater autonomy and control. Others
are studying the health impact of job insecurity, lack of support on
the job, and employment that makes it difficult to balance work and
family obligations.
Then there is the issue of social networks and support, the
differences in the knowledge, time and attention that a person's
family and friends are in a position to offer. What is the effect of
social isolation? Neighborhood differences have also been studied: How
stressful is a neighborhood? Are there safe places to exercise? What
are the health effects of discrimination?
Heart attack is a window on the effects of class on health. The risk
factors - smoking, poor diet, inactivity, obesity, hypertension, high
cholesterol and stress - are all more common among the less educated
and less affluent, the same group that research has shown is less
likely to receive cardiopulmonary resuscitation, to get emergency room
care or to adhere to lifestyle changes after heart attacks.
"In the last 20 years, there have been enormous advances in rescuing
patients with heart attack and in knowledge about how to prevent heart
attack," said [2]Ichiro Kawachi, a professor of social epidemiology at
the Harvard School of Public Health. "It's like diffusion of
innovation: whenever innovation comes along, the well-to-do are much
quicker at adopting it. On the lower end, various disadvantages have
piled onto the poor. Diet has gotten worse. There's a lot more work
stress. People have less time, if they're poor, to devote to health
maintenance behaviors when they are juggling two jobs. Mortality rates
even among the poor are coming down, but the rate is not anywhere near
as fast as for the well-to-do. So the gap has increased."
[3]Bruce G. Link, a professor of epidemiology and sociomedical
sciences at Columbia University, said of the double-edged consequences
of progress: "We're creating disparities. It's almost as if it's
transforming health, which used to be like fate, into a commodity.
Like the distribution of BMW's or goat cheese."
The Best of Care
Mr. Miele's advantage began with the people he was with on May 6, when
the lining of his right coronary artery ruptured, cutting off the flow
of blood to his 66-year-old heart. His two colleagues were
knowledgeable enough to dismiss his request for a taxi and call an
ambulance instead.
And because he was in Midtown Manhattan, there were major medical
centers nearby, all licensed to do the latest in emergency cardiac
care. The emergency medical technician in the ambulance offered Mr.
Miele (pronounced MEE-lee) a choice. He picked Tisch Hospital, part of
New York University Medical Center, an academic center with relatively
affluent patients, and passed up Bellevue, a city-run hospital with
one of the busiest emergency rooms in New York.
Within minutes, Mr. Miele was on a table in the cardiac
catheterization laboratory, awaiting an angioplasty to unclog his
artery - a procedure that many cardiologists say has become the gold
standard in heart attack treatment. When he developed ventricular
fibrillation, a heart rhythm abnormality that can be fatal within
minutes, the problem was quickly fixed.
Then Dr. James N. Slater, a 54-year-old cardiologist with some 25,000
cardiac catheterizations under his belt, threaded a catheter through a
small incision in the top of Mr. Miele's right thigh and steered it
toward his heart. Mr. Miele lay on the table, thinking about dying. By
3:52 p.m., less than two hours after Mr. Miele's first symptoms, his
artery was reopened and Dr. Slater implanted a stent to keep it that
way.
Time is muscle, as cardiologists say. The damage to Mr. Miele's heart
was minimal.
Mr. Miele spent just two days in the hospital. His brother-in-law, a
surgeon, suggested a few specialists. Mr. Miele's brother, Joel,
chairman of the board of another hospital, asked his hospital's
president to call N.Y.U. "Professional courtesy," Joel Miele explained
later. "The bottom line is that someone from management would have
called patient care and said, 'Look, would you make sure everything's
O.K.?' "
Things went less flawlessly for Mr. Wilson, a 53-year-old
transportation coordinator for Con Ed. He imagined fleetingly that he
was having a bad case of indigestion, though he had had a heart attack
before. His fiancée insisted on calling an ambulance. Again, the
emergency medical technician offered a choice of two nearby hospitals
- neither of which had state permission to do an angioplasty, the
procedure Mr. Miele received.
Mr. Wilson chose the Brooklyn Hospital Center over Woodhull Medical
and Mental Health Center, the city-run hospital that serves three of
Brooklyn's poorest neighborhoods. At Brooklyn Hospital, he was given a
drug to break up the clot blocking an artery to his heart. It worked
at first, said Narinder P. Bhalla, the hospital's chief of cardiology,
but the clot re-formed.
So Dr. Bhalla had Mr. Wilson taken to the Weill Cornell Center of
NewYork-Presbyterian Hospital in Manhattan the next morning. There,
Dr. Bhalla performed an angioplasty and implanted a stent. Asked later
whether Mr. Wilson would have been better off if he had had his heart
attack elsewhere, Dr. Bhalla said the most important issue in heart
attack treatment was getting the patient to a hospital quickly.
But he added, "In his case, yes, he would have been better off had he
been to a hospital that was doing angioplasty."
Mr. Wilson spent five days in the hospital before heading home on many
of the same high-priced drugs that Mr. Miele would be taking and under
similar instructions to change his diet and exercise regularly. After
his first heart attack in 2000, he quit smoking; but once he was
feeling better, he had stopped taking several medications, drifted
back to red meat and fried foods, and let his exercise program slip.
This time would be different, he vowed: "I don't think I'll survive
another one."
Ms. Gora's experience was the rockiest. First, she hesitated before
allowing her husband to call an ambulance; she hoped her symptoms
would go away. He finally insisted; but when the ambulance arrived,
she resisted leaving. The emergency medical technician had to talk her
into going. She was given no choice of hospitals; she was simply taken
to Woodhull, the city hospital Mr. Wilson had rejected.
Woodhull was busy when Ms. Gora arrived around 10:30 p.m. A triage
nurse found her condition stable and classified her as "high
priority." Two hours later, a physician assistant and an attending
doctor examined her again and found her complaining of chest pain,
shortness of breath and heart palpitations. Over the next few hours,
tests confirmed she was having a heart attack.
She was given drugs to stop her blood from clotting and to control her
blood pressure, treatment that Woodhull officials say is standard for
the type of heart attack she was having. The heart attack passed. The
next day, Ms. Gora was transferred to Bellevue, the hospital Mr. Miele
had turned down, for an angiogram to assess her risk of a second heart
attack.
But Ms. Gora, who was 59 at the time, came down with a fever at
Bellevue, so the angiogram had to be canceled. She remained at
Bellevue for two weeks, being treated for an infection. Finally, she
was sent home. No angiogram was ever done.
Comforts and Risks
Mr. Miele is a member of New York City's upper middle class. The son
of an architect and an artist, he worked his way through college,
driving an ice cream truck and upholstering theater seats. He spent
two years in the military and then joined his father's firm, where he
built a practice as not only an architect but also an arbitrator and
an expert witness, developing real estate on the side.
Mr. Miele is the kind of person who makes things happen. He bought a
$21,000 house in the Park Slope section of Brooklyn, sold it about 15
years later for $285,000 and used the money to build his current house
next door, worth over $2 million. In Brookhaven, on Long Island, he
took a derelict house on a single acre, annexed several adjoining lots
and created what is now a four-acre, three-house compound with an
undulating lawn and a 15,000-square-foot greenhouse he uses as a
workshop for his collection of vintage Jaguars.
Mr. Miele's architecture partners occasionally joked that he was not
in the business for the money, which to some extent was true. He had
figured out how to live like a millionaire, he liked to say, even
before he became one. He had worked four-day weeks for the last 20
years, spending long weekends with his family, sailing or iceboating
on Bellport Bay and rebuilding cars.
Mr. Miele had never thought of himself as a candidate for a heart
attack - even though both his parents had died of heart disease; even
though his brother had had arteries unclogged; even though he himself
was on hypertension medication, his cholesterol levels bordered on
high and his doctor had been suggesting he lose weight.
He was a passionate chef who put great store in the healthfulness of
fresh ingredients from the Mieles' vegetable garden or the
greengrocers in Park Slope. His breakfasts may have been a
cardiologist's nightmare - eggs, sausage, bacon, pastina with a
poached egg - but he considered his marinara sauce to be healthy
perfection: just garlic, oil, tomatoes, salt and pepper.
He figured he had something else working in his favor: he was happy.
He adored his second wife, Lori, 23 years younger, and their
6-year-old daughter, Emma. He lived within blocks of his two sisters
and two of his three grown children from his first marriage. The house
regularly overflowed with guests, including Mr. Miele's former wife
and her husband. He seemed to know half the people of Park Slope.
"I walk down the street and I feel good about it every day," Mr.
Miele, a gregarious figure with twinkling blue eyes and a taste for
worn T-shirts and jeans, said of his neighborhood. "And, yes, that
gives me a feeling of well-being."
His approach to his health was utilitarian. When body parts broke, he
got them fixed so he could keep doing what he liked to do. So he had
had disc surgery, rotator cuff surgery, surgery for a carpal tunnel
problem. But he was also not above an occasional bit of neglect. In
March 2004, his doctor suggested a stress test after Mr. Miele
complained of shortness of breath. On May 6, the prescription was
still hanging on the kitchen cabinet door.
An important link in the safety net that caught Mr. Miele was his
wife, a former executive at a sweater manufacturing company who had
stopped work to raise Emma but managed the Mieles' real estate as
well. While Mr. Miele was still in the hospital, she was on the
Internet, Googling stents.
She scheduled his medical appointments. She got his prescriptions
filled. Leaving him at home one afternoon, she taped his
cardiologist's business card to the couch where he was sitting. "Call
Dr. Hayes and let him know you're coughing," she said, her fingertips
on his shoulder. Thirty minutes later, she called home to check.
She prodded Mr. Miele, gently, to cut his weekly egg consumption to
two, from seven. She found fresh whole wheat pasta and cooked it with
turkey sausage and broccoli rabe. She knew her way around nutrition
labels.
Ms. Miele took on the burden of dealing with the hospital and
insurance companies. She accompanied Mr. Miele to his doctor's
appointments and retained pharmaceutical dosages in her head.
"I can just leave and she can give you all the answers to all the
questions," Mr. Miele said to his cardiologist, Dr. Richard M. Hayes,
one day.
"O.K., why don't you just leave?" Dr. Hayes said back. "Can she also
examine you?"
With his wife's support, Mr. Miele set out to lose 30 pounds. His
pasta consumption plunged to a plate a week from two a day. It was not
hard to eat healthfully from the Mieles' kitchens. Even the "junk
drawer" in Park Slope was stocked with things like banana chips and
sugared almonds. Lunches in Brookhaven went straight from garden to
table: tomatoes with basil, eggplant, corn, zucchini flower tempura.
At Dr. Hayes's suggestion, Mr. Miele enrolled in a three-month
monitored exercise program for heart disease patients, called cardiac
rehab, which has been shown to reduce the mortality rate among heart
patients by 20 percent. Mr. Miele's insurance covered the cost. He
even managed to minimize the inconvenience, finding a class 10 minutes
from his country house.
He had the luxury of not having to rush back to work. By early June,
he had decided he would take the summer off, and maybe cut back his
work week when he returned to the firm.
"You know, the more I think about it, the less I like the idea of
going back to work," he said. "I don't see any real advantage. I mean,
there's money. But you've got to take the money out of the equation."
So he put a new top on his 1964 Corvair. He played host to a large
family reunion, replaced the heat exchanger in his boat and
transformed the ramshackle greenhouse into an elaborate workshop. His
weight dropped to 189 pounds, from 211. He had doubled the intensity
of his workouts. His blood pressure was lower than ever.
Mr. Miele saw Dr. Hayes only twice in six months, for routine
follow-ups. He had been known to walk out of doctors' offices if he
was not seen within 20 minutes, but Dr. Hayes did not keep him
waiting. The Mieles were swept into the examining room at the
appointed hour. Buoyed by the evidence of Mr. Miele's recovery, they
would head out to lunch in downtown Manhattan. Those afternoons had
the feel of impromptu dates.
"My wife tells me that I'm doing 14-hour days," Mr. Miele mused one
afternoon, slicing cold chicken and piling it with fresh tomatoes on
toast. "She said, 'You're doing better now than you did 10 years ago.'
And I said, 'I haven't had sex in a week.' And she said, 'Well?' "
Just one unpleasant thing happened. Mr. Miele's partners informed him
in late July that they wanted him to retire. It caught him off guard,
and it hurt. He countered by taking the position that he was
officially disabled and therefore entitled to be paid through May 5,
2005. "I mean, the guy has a heart attack," he said later. "So you get
him while he's down?"
Lukewarm Efforts to Reform
Will Wilson fits squarely in the city's middle class. His parents had
been sharecroppers who moved north and became a machinist and a nurse.
He grew up in Bedford-Stuyvesant and had spent 34 years at Con Ed. He
had an income of $73,000, five weeks' vacation, health benefits, a
house worth $450,000 and plans to retire to North Carolina at 55.
Mr. Wilson, too, had imagined becoming an architect. But there had
been no money for college, so he found a job as a utility worker. By
age 22, he had two children. He considered going back to school, with
the company's support, to study engineering. But doing shift work, and
with small children, he never found the time.
For years he was a high-voltage cable splicer, a job he loved because
it meant working outdoors with plenty of freedom and overtime pay. But
on a snowy night in the early 1980's, a car skidded into a stanchion,
which hit him in the back. A doctor suggested that Mr. Wilson learn to
live with the pain instead of having disc surgery, as Mr. Miele had
done.
So Mr. Wilson became a laboratory technician, then a transportation
coordinator, working in a cubicle in a low-slung building in Astoria,
Queens, overseeing fuel deliveries for the company's fleet. Some
people might think of the work as tedious, Mr. Wilson said, "but it
keeps you busy."
"Sometimes you look back over your past life experiences and you
realize that if you would have done something different, you would
have been someplace else," he said. "I don't dwell on it too much
because I'm not in a negative position. But you do say, 'Well, dag,
man, I should have done this or that.' "
Mr. Wilson's health was not bad, but far from perfect. He had quit
drinking and smoking, but had high cholesterol, hypertension and
diabetes. He was slim, 5-foot-9 and just under 170 pounds. He traced
his first heart attack to his smoking, his diet and the stress from a
grueling divorce.
His earlier efforts to reform his eating habits were half-hearted.
Once he felt better, he stopped taking his cholesterol and
hypertension drugs. When his cardiologist moved and referred Mr.
Wilson to another doctor, he was annoyed by what he considered the
rudeness of the office staff. Instead of demanding courtesy or finding
another specialist, Mr. Wilson stopped going.
By the time Dr. Bhalla encountered Mr. Wilson at Brooklyn Hospital,
there was damage to all three main areas of his heart. Dr. Bhalla
prescribed a half-dozen drugs to lower Mr. Wilson's cholesterol,
prevent clotting and control his blood pressure.
"He has to behave himself," Dr. Bhalla said. "He needs to be more
compliant with his medications. He has to really go on a diet, which
is grains, no red meat, no fat. No fat at all."
Mr. Wilson had grown up eating his mother's fried chicken, pork chops
and macaroni and cheese. He confronted those same foods at holiday
parties and big events. There were doughnut shops and fried chicken
places in his neighborhood; but Mr. Wilson's fiancée, Melvina Murrell
Green, found it hard to find fresh produce and good fish.
"People in my circle, they don't look at food as, you know, too much
fat in it," Mr. Wilson said. "I don't think it's going to change. It's
custom."
At Red Lobster after his second heart attack, Ms. Green would order
chicken and Mr. Wilson would have salmon - plus a side order of fried
shrimp. "He's still having a problem with the fried seafood," Ms.
Green reported sympathetically.
Whole grains remained mysterious. "That we've got to work on," she
said. "Well, we recently bought a bag of grain something. I'm not used
to that. We try to put it on the cereal. It's O.K."
In August, Ms. Green's blood pressure shot up. The culprit turned out
to be a turkey chili recipe that she and Mr. Wilson had discovered:
every ingredient except the turkey came from a can. She was shocked
when her doctor pointed out the salt content. The Con Ed cafeteria,
too, was problematic. So Mr. Wilson began driving to the Best Yet
Market in Astoria at lunch to troll the salad bar.
Dr. Bhalla had suggested that Mr. Wilson walk for exercise. There was
little open space in the neighborhood, so Mr. Wilson and Ms. Green
often drove just to go for a stroll. In mid-October he entered a
cardiac rehab program like Mr. Miele's, only less convenient. He would
drive into Manhattan after work, during the afternoon rush, three days
a week. He would hunt for on-street parking or pay too much for a
space in a lot. Then a stranger threatened to damage Mr. Wilson's car
in a confrontation over a free spot, so Mr. Wilson switched to the
subway.
For a time, he considered applying for permanent disability. But Con
Ed allowed him to return to work "on restrictions," so he decided to
go back, with plans to retire in a year and a half. The week before he
went back, he and Ms. Green took a seven-day cruise to Nassau. It was
a revelation.
"Sort of like helped me to see there's a lot more things to do in
life," he said. "I think a lot of people deny themselves certain
things in life, in terms of putting things off, 'I'll do it later.'
Later may never come."
Ignoring the Risks
Ms. Gora is a member of the working class. A bus driver's daughter,
she arrived in New York City from Krakow in the early 1990's, leaving
behind a grown son. She worked as a housekeeper in a residence for the
elderly in Manhattan, making beds and cleaning toilets. She said her
annual income was $21,000 to $23,000 a year, with health insurance
through her union.
For $365 a month, she rented a room in a friend's Brooklyn apartment
on a street lined with aluminum-sided row houses and American flags.
She used the friend's bathroom and kitchen. She was in her seventh
year on a waiting list for a subsidized one-bedroom apartment in the
adjacent Williamsburg neighborhood. In the meantime, she had acquired
a roommate: Edward Gora, an asbestos-removal worker newly arrived from
Poland and 10 years her junior, whom she met and married in 2003.
Like Mr. Miele, Ms. Gora had never imagined she was at risk of a heart
attack, though she was overweight, hypertensive and a 30-year smoker,
and heart attacks had killed her father and sister. She had numerous
health problems, which she addressed selectively, getting treated for
back pain, ulcers and so on until the treatment became too expensive
or inconvenient, or her insurance declined to pay.
"My doctor said, 'Ewa, be careful with cholesterol,' " recalled Ms.
Gora, whose vestigial Old World sense of propriety had her dressed in
heels and makeup for every visit to Bellevue. "When she said that, I
think nothing; I don't care. Because I don't believe this touch me. Or
I think she have to say like that because she doctor. Like cigarettes:
she doctor, she always told me to stop. And when I got out of the
office, lights up."
Ms. Gora had a weakness for the peak of the food pyramid. She grew up
on her mother's fried pork chops, spare ribs and meatballs - all
cooked with lard - and had become a pizza, hamburger and French fry
enthusiast in the United States. Fast food was not only tasty but also
affordable. "I eat terrible," she reported cheerily from her bed at
Bellevue. "I like grease food and fast food. And cigarettes."
She loved the feeling of a cigarette between her fingers, the rhythmic
rise and fall of it to her lips. Using her home computer, she had
figured out how to buy Marlboros online for just $2.49 a pack. Her
husband smoked, her friends all smoked. Everyone she knew seemed to
love tobacco and steak.
Her life was physically demanding. She would rise at 6 a.m. to catch a
bus to the subway, change trains three times and arrive at work by 8
a.m. She would make 25 to 30 beds, vacuum, cart out trash. Yet she
says she loved her life. "I think America is El Dorado," she said.
"Because in Poland now is terrible; very little bit money. Here, I
don't have a lot of, but I live normal. I have enough, not for rich
life but for normal life."
The precise nature of Ms. Gora's illness was far from clear to her
even after two weeks in Bellevue. In her first weeks home, she
remained unconvinced that she had had a heart attack. She arrived at
the Bellevue cardiology clinic for her first follow-up appointment
imagining that whatever procedure had earlier been canceled would then
be done, that it would unblock whatever was blocked, and that she
would be allowed to return to work.
Jad Swingle, a doctor completing his specialty training in cardiology,
led Ms. Gora through the crowded waiting room and into an examining
room. She clutched a slip of paper with words she had translated from
Polish using her pocket dictionary: "dizzy," "groin," "perspiration."
Dr. Swingle asked her questions, speaking slowly. Do you ever get
chest discomfort? Do you get short of breath when you walk?
She finally interrupted: "Doctor, I don't know what I have, why I was
in hospital. What is this heart attack? I don't know why I have this.
What I have to do to not repeat this?"
No one had explained these things, Ms. Gora believed. Or, she
wondered, had she not understood? She perched on the examining table,
ankles crossed, reduced by the setting to an oversize, obedient child.
Dr. Swingle examined her, then said he would answer her questions "in
a way you'll understand." He set about explaining heart attacks: the
narrowed artery, the blockage, the partial muscle death.
Ms. Gora looked startled.
"My muscle is dead?" she asked.
Dr. Swingle nodded.
What about the procedure that was never done?
"I'm not sure an angiogram would help you," he said. She needed to
stop smoking, take her medications, walk for exercise, come back in a
month.
"My muscle is still dead?" she asked again, incredulous.
"Once it's dead, it's dead," Dr. Swingle said. "There's no bringing it
back to life."
Outside, Ms. Gora tottered toward the subway, 14 blocks away, on pink
high-heeled sandals in 89-degree heat. "My thinking is black," she
said, uncharacteristically glum. "Now I worry. You know, you have
hand? Now I have no finger."
If Mr. Miele's encounters with the health care profession in the first
months after his heart attack were occasional and efficient, Ms.
Gora's were the opposite. Whereas he saw his cardiologist just twice,
Ms. Gora, burdened by complications, saw hers a half-dozen times.
Meanwhile, her heart attack seemed to have shaken loose a host of
other problems.
A growth on her adrenal gland had turned up on a Bellevue CAT scan,
prompting a visit to an endocrinologist. An old knee problem flared
up; an orthopedist recommended surgery. An alarming purple rash on her
leg led to a trip to a dermatologist. Because of the heart attack, she
had been taken off hormone replacement therapy and was constantly
sweating. She tore open a toe stepping into a pothole and needed
stitches.
Without money or connections, moderate tasks consumed entire days. One
cardiology appointment coincided with a downpour that paralyzed the
city. Ms. Gora was supposed to be at the hospital laboratory at 8 a.m.
to have blood drawn and back at the clinic at 1 p.m. In between, she
wanted to meet with her boss about her disability payments. She had a
4 p.m. appointment in Brooklyn for her knee.
So at 7 a.m., she hobbled through the rain to the bus to the subway to
another bus to Bellevue. She was waiting outside the laboratory when
it opened. Then she took a bus uptown in jammed traffic, changed
buses, descended into the subway at Grand Central Terminal, rode to
Times Square, found service suspended because of flooding, climbed the
stairs to 42nd Street, maneuvered through angry crowds hunting for
buses and found another subway line.
She reached her workplace an hour and a half after leaving Bellevue;
if she had had the money she could have made the trip in 20 minutes by
cab. Her boss was not there. So she returned to Bellevue and waited
until 2:35 p.m. for her 1 o'clock appointment. As always, she asked
Dr. Swingle to let her return to work. When he insisted she have a
stress test first, a receptionist gave her the first available
appointment - seven weeks away.
Meanwhile, Ms. Gora was trying to stop smoking. She had quit in the
hospital, then returned home to a husband and a neighbor who both
smoked. To be helpful, Mr. Gora smoked in the shared kitchen next
door. He was gone most of the day, working double shifts. Alone and
bored, Ms. Gora started smoking again, then called Bellevue's free
smoking cessation program and enrolled.
For the next few months, she trekked regularly to "the smoking
department" at Bellevue. A counselor supplied her with nicotine
patches and advice, not always easy for her to follow: stay out of the
house; stay busy; avoid stress; satisfy oral cravings with, say,
candy. The counselor suggested a support group, but Ms. Gora was too
ashamed of her English to join. Even so, over time her tobacco craving
waned.
There was just one hitch: Ms. Gora was gaining weight.
To avoid smoking, she was eating. Her work had been her exercise and
now she could not work. Dr. Swingle suggested cardiac rehab, leaving
it up to Ms. Gora to find a program and arrange it. Ms. Gora let it
slide. As for her diet, she had vowed to stick to chicken, turkey,
lettuce, tomatoes and low-fat cottage cheese. But she got tired of
that. She began sneaking cookies when no one was looking - and no one
was.
She cooked separate meals for Mr. Gora, who was not inclined to change
his eating habits. She made him meatballs with sauce, liver, soup from
spare ribs. Then one day in mid-October, she helped herself to one of
his fried pork chops, and was soon eating the same meals he was. As an
alternative to eating cake while watching television, she turned to
pistachios, and then ate a pound in a single sitting.
Cruising the 99 Cent Wonder store in Williamsburg, where the freezers
were filled with products like Budget Gourmet Rigatoni with Cream
Sauce, she pulled down a small package of pistachios: two and a half
servings, 13 grams of fat per serving. "I can eat five of these," she
confessed, ignoring the nutrition label. Not servings. Bags.
Heading home after a trying afternoon in the office of the apartment
complex in Williamsburg, where the long-awaited apartment seemed
perpetually just out of reach, Ms. Gora slipped into a bakery and
emerged with a doughnut, her first since her heart attack. She found a
park bench where she had once been accustomed to reading and smoking.
Working her way through the doughnut, confectioners' sugar snowing
onto her chest, she said ruefully, "I miss my cigarette."
She wanted to return to work. She felt uncomfortable depending on Mr.
Gora for money. She worried that she was becoming indolent and losing
her English. Her disability payments, for which she needed a doctor's
letter every month, came to just half her $331 weekly salary. Once,
she spent hours searching for the right person at Bellevue to give her
a letter, only to be told to come back in two days.
The co-payments on her prescriptions came to about $80 each month.
Unnerving computer printouts from the pharmacist began arriving:
"Maximum benefit reached." She switched to her husband's health
insurance plan. Twice, Bellevue sent bills for impossibly large
amounts of money for services her insurance was supposed to cover.
Both times she spent hours traveling into Manhattan to the hospital's
business office to ask why she had been billed. Both times a clerk
listened, made a phone call, said the bill was a mistake and told her
to ignore it.
When the stress test was finally done, Dr. Swingle said the results
showed she was not well enough to return to full-time work. He gave
her permission for part-time work, but her boss said it was out of the
question. By November, her weight had climbed to 197 pounds from 185
in July. Her cholesterol levels were stubbornly high and her blood
pressure was up, despite drugs for both.
In desperation, Ms. Gora embarked upon a curious, heart-unhealthy diet
clipped from a Polish-language newspaper. Day 1: two hardboiled eggs,
one steak, one tomato, spinach, lettuce with lemon and olive oil.
Another day: coffee, grated carrots, cottage cheese and three
containers of yogurt. Yet another: just steak. Ms. Gora decided not to
tell Dr. Swingle. "I worry if he don't let me, I not lose the weight,"
she said.
Uneven Recoveries
By spring, Mr. Miele's heart attack, remarkably, had left him better
off. He had lost 34 pounds and was exercising five times a week and
taking subway stairs two at a time. He had retired from his firm on
the terms he wanted. He was working from home, billing $225 an hour.
More money in less time, he said. His blood pressure and cholesterol
were low. "You're doing great," Dr. Hayes had said. "You're doing
better than 99 percent of my patients."
Mr. Wilson's heart attack had been a setback. His heart function
remained impaired, though improved somewhat since May. At one recent
checkup, his blood pressure and his weight had been a little high. He
still enjoyed fried shrimp on occasion but he took his medications
diligently. He graduated from cardiac rehab with plans to join a
health club with a pool. And he was looking forward to retirement.
Ms. Gora's life and health were increasingly complex. With Dr.
Swingle's reluctant approval, she returned to work in November. She
had moved into the apartment in Williamsburg, which gave her a kitchen
and a bathroom for the first time in seven years. But she began
receiving menacing phone calls from a collection agency about an old
bill her health insurance had not covered. Her husband, with double
pneumonia, was out of work for weeks.
She had her long-awaited knee surgery in January. But it left her
temporarily unable to walk. Her weight hit 200 pounds. When the diet
failed, she considered another consisting largely of fruit and
vegetables sprinkled with an herbal powder. Her blood pressure and
cholesterol remained ominously high. She had been warned that she was
now a borderline diabetic.
"You're becoming a full-time patient, aren't you?" Dr. Swingle
remarked.
References
2. http://www.hsph.harvard.edu/faculty/IchiroKawachi.html
3. http://chaos.cpmc.columbia.edu/sphdir/pers.asp?ID=599
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