[ExI] the ultimate invasion of privacy?

[William Flynn Wallace]

spike wrote -

For the price of privacy, humanity could have access to more
medically-useful DNA/disease correlations.

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Do you all think it's fair that a person has to give up his DNA in order to
get health insurance, or pay a big premium if he doesn't?  Because I think
that's where it is headed.

Example - a person shows up with a double dose of the dominant gene for
Huntingdon's chorea.  Prognosis - death before 50 (I am guessing here).  No
company wants this person, and yet he may have other health issues that
need insuring before he dies later on.

I have lived with two cancers now for about 20 years and my prognosis is
still good, yet no insurance company would have give me insurance (I get
mine through teacher's retirement, so they had no choice).  And I have not
been able to get life insurance, not that I really wanted any.

Earlier I was mocked a bit for belittling the Big Data problem which
results for me in too many garden catalogs.  This one goes way beyond
personalized ads and spam, right?  And way beyond someone having your
recorded phone conversations etc.

Another point of concern:  if you don't voluntarily share your DNA tests,
it's very easy to steal my DNA or anyone's.

bill w

On Wed, Mar 15, 2017 at 5:28 PM, spike <spike66 at att.net> wrote:

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> *>… Behalf Of *William Flynn Wallace
> *Subject:* [ExI] the ultimate invasion of privacy?
>
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> https://www.scientificamerican.com/article/house-republicans-
> would-let-employers-demand-workers-rsquo-genetic-test-
> results/?WT.mc_id=SA_WR_20170315
>
>
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> >…bill w
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> I can imagine an alternative deal whereby a health insurance company would
> offer a discount in exchange for a spit sample.
>
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> Scenario: insurance company with millions of clients with DNA is able to
> do correlation studies, do a pumped-up version of what 23&Me attempted and
> mostly failed to do.  23&Me relied on participant surveys.  This is some of
> the least reliable data sets imaginable: most patients don’t know what is
> wrong with them.  Now if the insurance companies had this info, they know
> what is wrong with the patients because they pay the medical bills.  For
> the price of privacy, humanity could have access to more medically-useful
> DNA/disease correlations.
>
>
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> In exchange, perhaps we could require the insurance companies to make the
> knowledge public domain?
>
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> Alternative: a volunteer identity-obscured data pool whereby participants
> would give their medical records and DNA to the whole scientific world,
> knowing that it might involve personal sacrifices.
>
>
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> Alternative: a volunteer identity-included public domain DNA and medical
> records database?  We could perhaps get volunteers among the elderly who
> have little to lose and much to give?
>
>
>
> spike
>
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>
>
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